Tag Archives: immunosuppressive

I’m baaaaaaaack

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Great news! My brother was discharged from Johns Hopkins on Thursday and we were given the go ahead to move back to Dallas!

After the transplant, my brother was going to the hospital everyday to have his levels checked, get transfusions, make sure there was no infection, etc. After about a month, he only had to go 4-5x a week, now, once a week! He’s also transfusion independent, so he’s making his own healthy blood cells and platelets!

The transformation has been incredible. To see my brother back to his energetic, playful self has been a blessing. Thank you for all the positive energy you have sent our way. I think it truly made a difference in his recovery.

He still has a long road ahead, he still has to avoid sick people, or anyone that’s been exposed to someone who is sick (he lost all of his vaccines since he has a new immune system). He has to stay out of the sunlight because sunburns can be especially damaging. Even so, it’ll be nice to have him in Dallas for a while longer and also to be home myself.

I’m very happy to be home. The city life just isn’t for me. Not in Baltimore, anyway. Three years ago, maybe. But today I’m in the mindset that if one more person throws their dog’s poop in my trashcan, or waits for the bus in the middle of the street (why??!), or walks into traffic blindly, failing to use even the most common of sense, I’m going to freaking lose it!

That being said, it was still awesome to spend so much time with my big brother in Baltimore. My brother is the best guy I know, he’s always there for me and present when I need him to be. He offers me priceless advice and wisdom and I love spending time with him and talking to him. I definitely won the sibling lottery, he’s my hero and I know he would do anything for me. Including going through painful, debilitating treatments and the fight of his life so I don’t have to live without him.

yep, this was pretty much our entertainment.

So what now? Well, I was offered a live-in nanny position for my little chickpea’s family and I accepted. I love her and her brother so much, I am very excited to be a part of their daily lives and be a positive influence on them as they grow. So this will really be the start of something new!

my little chickpea turned one this week, so I made her a scrapbook of her first year

my little chickpea turned one this week, so I made her a scrapbook of her first year

I also got a great part time morning job with another family with a little girl and a newbie set to arrive at the end of next month. I’m really excited about both opportunities, I still feel very much like this is what I am supposed to be doing right now. It makes me happy and I love my work. That’s all I’ve ever wanted.

I really wanted to travel after I was done in Baltimore, but I think it will have to wait. Luckily, with my new job I can accrue vacation time. Also, since they pay for rent and food I can save up for a great vacation and other things. It just takes patience, which I’m used to.

So. I’m home for good! I start my new job in July, June is going to be a time to regroup, I’ll be working a little but also taking it easy and trying to get into the right mindset for what’s ahead. I’m still doing heavy personal growth work, even more so than before. It’s already helping me achieve more clarity about who I am, what I want out of life and who I want to eventually become.

That’s about it! Thanks so much for reading, I’ll write again soon.

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